The following excerpt is taken from Chapter
9
of Pervasive Developmental Disorders: Finding a Diagnosis and Getting
Help by Mitzi Waltz, copyright 1999 by O'Reilly &
Associates, Inc. For book orders/information, call
(800) 998-9938. Permission is granted to print and distribute this
excerpt for noncommercial use as long as the above source is
included. The information in this article is meant to educate and
should not be used as an alternative for professional medical care.
The Canadian special education process is very similar to that used in the
US. Provincial guidelines are set down by the national Ministry of Education and
governed by the Education Act, but most decisions are made at the regional,
district, or school level. Evaluations are done by a team that may include a
school district psychologist, a behavior specialist, a special education
teacher, other school or district personnel, and in some cases a parent,
although the latter is not required by law as it is in the US.
Children between the ages of six and twenty-two may qualify for special
education assistance under the Designated Disabled Program (DDP), the Special
Needs Program (SNP), or the Targeted Behaviour Program (TBP), depending on the
labels they receive in evaluation.
The evaluation is used as a basis for an IEP. Almost identical to the US
document of the same name, the IEP is usually updated yearly or more frequently
if needed. A formal review is required every three years.
We have IEPs, but they don't have quite the same clout here that they appear to
have under the US legislation. What you have to trumpet here is the legal
requirement, under human rights legislation, that disability be
"accommodated." For us, the school counselor is being very helpful, as
is the district behavior specialist. I'm doing some research at the moment on
the actual legal requirements so that I know just how much I can demand. I've
found the most effective resource is to be a pleasant, informed, persistent,
somewhat annoying pest. --Rae, mother of thirteen-year-old
D'Arcy
A full range of placement options is available for Canadian students, from
home-based instruction to full inclusion. Partial inclusion is increasingly
common, as is supported mainstreaming. Students from rural or poorly served
areas may be sent to a residential school, or funding may be provided for room
and board to allow the student to attend a day program outside of her home
area.
If disputes arise between the school or the district and the parents, there
is a School Division Decision Review Process available for adjudicating them.
The concept known as due process in the US is usually referred to as
fundamental justice in Canada.
When a child in the UK is judged eligible for special education services, he
is said to be statemented. This term refers to an IEP-like document
called a Statement of Special Educational Needs, or Record of Needs. This
document is developed at the council level by the Local Educational Authority
(LEA), and lists the services that a statemented child needs. Usually the team
that creates the statement includes an educational psychologist, a teacher, and
the parents. It may also include the family's health visitor or other personnel,
such as a speech therapist, physiotherapist, occupational therapist, or child
development specialist. Each child's statement is reviewed and updated annually.
Disability advocates strongly urge parents to get expert help with the
statementing process.
Your LEA can limit services according to its budget, even if those services
are listed as necessary on your child's statement. Service availability varies
widely between LEAs. Some therapeutic services, such as speech therapy, may also
be available through National Health.
School placements in the UK run the gamut from residential schools to
specialist schools to full inclusion in mainstream schools. There are more
residential options available than in the US system due to the English tradition
of public schools (American readers may be confused by this term: in the UK,
"public schools" are privately owned and run, while government schools
are those run by the LEAs).
Schools working with statemented students operate under a government Code of
Practice that is analogous to, but much weaker than, the federal IDEA in the US.
Parents and disability advocates can insist that LEAs follow this code when
devising programs for statemented students, and have access to a formal appeals
process.
The UK government has recently taken steps toward improving Early
Intervention offerings. Currently, EI services are not mandated by law, although
they are available in many areas.
Parents report that home-schooling a child with a disability is particularly
hard in some parts of the UK. Regular inspection by an educational welfare
officer is required, and some of these bureaucrats are not very knowledgeable
about disabilities. Parents should be prepared to document their child's
educational experiences and learning progress.
The Autism UK Web site provides many pointers for
parents.
Australia's system is paradoxically looser and yet more accommodating to
students with disabilities of all sorts. There is only a thin legal framework
for the provision of special education services, but in the urban areas, where
most Australians live, these services are apparently no harder to obtain than
they are in the UK.
Early Intervention services are usually readily available in urban areas for
children age six and under, including EI services specifically for autistic
students. To obtain an EI evaluation, parents should contact the Specialist
Children's Services Team at their local Department of Human Services.
Placement options for older children include residential schools (including
placement in residential schools located in the UK, for some students), Special
Schools for children with moderate to severe developmental delay or autistic
spectrum disorder, special classrooms for disabled children within regular
schools, and the full range of mainstreaming options. "Mix and match"
placements that allow students to be mainstreamed for just part of the day are
still rare, however. For students in rural areas, there is a Traveling Teacher
service focused on autism and other disabilities.
There are federal regulations regarding special education, but most of the
regulatory action takes place through each state's Department of Education,
Training, and Employment (DETS, formerly called the Department of Education and
Children's Services), or at a local or school level. The DETS in each state
provides information, parent services, assistive technology, augmentative
communication, special curricula, and many more services for students with
disabilities.
The Autism Victoria Web site offers links to a number of
excellent education-related resources throughout Australia.
We don't have anything like IEPs, and I think that there are some cultural
factors involved in the way disability is approached here. I've been trying to
put my finger on just what it is ... I think it has to do with the fact that
Australian society is less "harsh" than American society. There's a
bit more sense of cooperation and caring for the underdog. People don't talk as
much about "rights," don't sue each other very often, etc. (though it
is happening more). Perhaps there has been less need to label kids because there
is somewhat less tendency to isolate and discriminate.
I'm not saying that there aren't huge problems for kids with differences
(especially subtle differences which aren't at all obvious); however, I think
that people here tend to expect to talk things through with schools and teachers
and make informal arrangements. There's an expectation of reasonableness, in
many cases. I get to know teachers on a personal level and explain about Kim's
differences. On the one hand we have less bureaucratization of services and more
individual innovation, on the other hand we have less services altogether.
--Kerry, mother of twelve-year-old Kim
Students who qualify for special education services in New Zealand are called
"section nined" (old terminology) or "qualified for the Ongoing
Resourcing Scheme" (ORS). ORS qualification is currently reserved for those
children whose impairment is judged to be "high" or "very
high," with the most resources going to the latter group. As of this
writing, special education services for early childhood centers and home-based
programs are not funded. Nevertheless, some young children with PDDs receive
Early Intervention services through special arrangement, in a clinical setting,
or in home-based programs.
The Ministry of Education sets up qualifying guidelines for early childhood
and school-age special education services. The Autistic
Association of New Zealand provides parent education, expert evaluation
services, educational and vocational advocacy, and other direct services.
Recent news reports indicate that limited local resources and a move to push
for full inclusion under the Special Education 2000 program has eliminated many
special education resources that were once available in New Zealand's schools.
Autistic spectrum children are said to be highly represented in the large group
that is now being denied ORS funding.
School placements include a few special schools, attached special education
units within regular schools, and a range of inclusion options in mainstream
settings. Some students are in residential settings. Under Special Education
2000, many more schools will have a resource-room-like arrangement rather than
self-contained special education units.
Lifespan services for autistic spectrum individuals in New Zealand have been
getting a closer look since the death of an autistic girl in 1997.
Seventeen-year-old Casey Albury was killed by her mother, who cracked under the
strain of caring for her without the availability of respite or other needed
services.
Changing educational paradigms
No matter where you go in the world, there's one similarity in the nature of
educational services for children and adults with PDDs: an increasing emphasis
on intensive intervention early in life and a wider spectrum of services for
older children and adults as well.
At the same time, most school systems are struggling with budget
restrictions. How these conflicting forces will affect educational service
offerings for children with PDD-NOS and atypical PDD remains to be seen.