Think about all of the times that you or your child are alone during the day or with people who may not know about your condition. If your shunt were to malfunction, or if your child were to have a seizure when he was with friends, would they know what to do? This section contains tips on how to help others help you in case of an emergency.
Family and friends
Make sure as many people as possible around you know about your hydrocephalus. If you’re uncomfortable discussing your condition, inform those closest to you and most likely to be present should an emergency arise. It’s not important to tell others all the details about every operation or revision, but do give them enough information so they are aware of possible shunt complications.