|SEBASTOPOL, CA – This year’s list of aftercare centers for childhood cancer survivors in the United States has been named by a group of parents of survivors, including Nancy Keene, well-known patient advocate and author of books that help families of children with cancer.
“The powerful drugs and radiation used to cure children affect developing minds and growing bodies,” said Keene, co-author of Childhood Cancer Survivors: A Practical Guide to Your Future. “270,000 survivors of childhood cancer live in the U.S. and unfortunately, they often do not get comprehensive follow up to help them make the most of the lives they fought to win.”
After years of personally answering hundreds of phone calls and emails from desperate survivors searching for doctors who understood their unique needs, Keene helped create this list of programs for childhood cancer survivors. Again this year, she surveyed major children’s hospitals across the nation to find out which ones currently provided comprehensive services to children, teens, and adults who are survivors of childhood cancer.