The following excerpt is taken from Chapter
7
of Life on Wheels: For the Active Wheelchair User, by Gary Karp,
copyright 1999, published by O'Reilly & Associates, Inc.
To order, or get more information about Gary's book, call
(800) 998-9938. Permission is granted to print and
distribute this excerpt for noncommercial use as long
as the above source is included. The information in this
article is meant to educate and should not be used as an
alternative for professional medical care.
The ability to communicate over distances is key for people with limited
mobility. The phone can be the link to your social world, maintaining
relationships through calls with friends and family. A phone line for an
Internet connection can be a link to a wider community, as in the case of this
man with Friedrich's ataxia:
The Internet has enhanced my life a great deal. I'm an amateur writer, and the
World Wide Web has been a great research tool for my writing projects. I have
been able to converse with some great people about many different things. By
using a computer I am more independent than I would be otherwise. The computer
has been the impetus for some of the best things I feel I've ever done. I use a
wheelchair, my hand/eye coordination and balance are very poor, but the
computer allows me to function as a productive member of society.
It is helpful to have an additional telephone line for an Internet connection.
When the computer is hooked up to the Internet, no one else can call in or out.
If you have a business and a fax machine, you might find it necessary to have
several phone lines.
Telephone jacks are best placed near electrical outlets, since computers, fax,
and answering machines also need power. General advice is to have at least one
phone jack in each room where you are likely to spend more than a few minutes
at a time.
A telephone line is also a lifeline. A speaker phone with a speed-dial button
might only require pressing one or two buttons, without having to pick up the
handset, in order to make an emergency call. There are services that allow you
to carry an alarm button which will make an automatic phone call to a
healthcare facility or security agency. Some medical equipment can have similar
features, in which a phone call is made if the machine experiences a shutdown
that could be life-threatening. Dedicated phone lines might be needed in these
cases.
Many telephone companies have disability programs to provide special equipment.
For example, Pacific Bell gives people speaker phones or headsets free of
charge once you and your physician fill out the application.
Telephones are available with large, lighted buttons which are easy to press.
Quadriplegics with little arm movement can freely access the telephone via
puff-and-sip control systems that allow them to choose from a preprogrammed
list of numbers or dial a new one. Hands-free telephone access is possible.
Remote--or cordless--telephones are very helpful. It can take some time to get
to a fixed telephone set--for instance, if you are not in your wheelchair when
the phone rings--and you might miss calls. (You can let people who call you
regularly know that you might need more time to answer.) A remote phone goes
where you go, which is especially helpful in the bathroom. These products have
improved a great deal in recent years. The sound quality is good, multiple
channels are available in case you get static, and 2.4 GHz phones can have a
range of 1,000 feet or more.
Now that I have a remote phone, I never miss calls. I can take it in the
bathroom or outside. I never hear someone hanging up just as I pick up the
phone because it took me a little longer to get there--especially if I'm doing
the dishes, because I have to dry my hands before I can touch the wheels,
whereas someone who walks can dry their hands as they walk to the phone.
Intercom systems allow easy communication or monitoring and are especially
useful for people who have very restricted mobility or who must spend a share
of each day in bed or on a breathing apparatus. Intercom systems can be helpful
for monitoring guests at the front door. Commercial systems are now available
for the home with video capability, so you can see who is there and be able to
speak with them as well.
There are two types of intercom systems. One uses its own wiring, usually
threaded through the wall cavities--an approach which provides the clearest
sound. Wiring is best done during new construction, but is possible to install
in an existing home; surface conduits can be used.
The other type of intercom system uses carrier current. The intercom is
integrated into electrical wiring, which carries the signal alongside the
electricity. Components plug into outlets in order to transmit the signals.
Some static is picked up from the shared wiring. These systems are generally
less expensive than intercoms with their own wiring.
There are now elaborate home control systems that allow you to:
- Control the volume of televisions or sound systems
- Adjust lights
- Lock and unlock or open and close doors and windows
- Control heating and ventilation
- Turn on appliances of all kinds
- Use telephone systems
Some systems are designed for ease of use, with disabilities in mind. When you
shop for a system, learn the details of how it operates. Operation should be
clear, intuitive, and not demand much memorizing of commands. Controls should
be easy to operate without fine dexterity or the need to apply much force. The
controls for a home control system can be integrated into a power wheelchair.
For instance, a head switch could be used to open or close a door.
Voice-activation or puff-and-sip controls can be positioned at a bedside for a
quadriplegic user.
The functioning of a home control system also relies on the installation of
appropriate mechanisms such as automatic door closers. Each home control system
may provide some of its own mechanisms for doors and windows. Appliances you
already own might not be compatible with some control products.
As with intercoms, there are hard-wired versions and carrier current types of
home control systems. The X-10 standard is an example of a carrier current type
of system. Modules are purchased which plug into power outlets and then the
appliances to be controlled. Such a system can be expanded over time, as your
budget allows.
Everything is working fine with the X-10 protocol; I've never had a problem. It
controls lights, electric devices, temperature (heating/air conditioning),
built-in alarm system and medic-alert, with scenarios that you can program. For
instance, when I enter the bathroom, the lights fade in by themselves and fade
out after a predetermined number of minutes. You can control everything either
by phone, with a remote, or by a touch-screen panel.
Ron Mace liked the product because it met his criteria for Universal Design:
The X-10 product came out as a consumer product--not a disability
access/adaptive technology product.
A loss of mobility implies increased risk in the event of an emergency. Early
warning is critical for a person with a disability.
Warning alarms include smoke, fire, and gas detectors. The alarm design should
consider a variety of sensory needs. A buzzer or siren for warning might not be
sufficient. Products are available with strobe lights which can waken sighted
people from a deep sleep and thus also serve people with hearing disabilities.
Check alarm batteries often. Smoke and heat sensors need to be placed high up
on a wall or on the ceiling, since heat rises. Provide some means for a person
with a disability to turn off the alarm, even if that is with a broom handle
kept nearby. Some homes and apartment complexes have systems which notify a
security office or the police or fire station in the event of fire or
emergency. Be sure that everyone in the household knows the codes for setting
and defeating these systems.
It is a good idea to inform building management or neighbors that someone is in
the household who might need assistance in an emergency. Local police and fire
departments might also keep such lists. Find out what kind of emergency
assistance programs exist in your community. Put a wheelchair symbol in your
bedroom window to identify yourself, and develop an escape plan with your
family, neighbors, or attendant.